Announcement

Collapse
No announcement yet.

Welcome to our forum! Before posting your questions, please read the following terms:

  1. 1. Forum questions will be responded to by InfantRisk staff as schedules permit during normal business hours.
  2. 2. This forum is not intended for emergencies or urgent care. For any immediate medical concerns, please seek appropriate medical attention.
  3. 3. Any statements made by team members should be discussed with your medical care team. Your healthcare providers know you (and your baby) best, and should have a better understanding of your unique situation.
  4. 4. We are a small team dedicated to helping you as best as we can. However, for the quickest response, we recommend calling the InfantRisk Center at +1(806) 352-2519.

By posting to the forums, you acknowledge and agree to these terms.

The InfantRisk team

Orkambi and Breastfeeding alternating every other week?

Collapse
X
Collapse
 
  • Page of 1
  • Filter
  • Time
  • Show
Clear All
new posts
Previous template Next
  • #1

    Orkambi and Breastfeeding alternating every other week?

    Hello. How long does Orkambi stay in the mother's body? Could I alternate between breastfeeding for a week, and getting back on Orkambi for a week and throwing out the pumped milk?
    Thanks!
    Tags: None
  • #2
    CysticFibrosisMama,

    Orkambi is a combination drug of lumacaftor and ivacaftor. The half-life of lumacaftor is approximately 26 hours in patients with CF. The half-life of ivacaftor when given with lumacaftor is approximately 9 hours. Dr Hale recommends having a monthly liver panel on the infant and regular eye exams to check for cataracts.

    Dr Hale would love to do a case study with your breast milk. If interested in the study please call the InfantRiskCenter at 806-352-2519, all it will cost is a little of your breast milk and it will help other mothers down the road.


    Thanks,

    Sandra Lovato R.N.

    Comment

    Previous template Next
    Working...
    X