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Orkambi and Breastfeeding alternating every other week?

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  • Orkambi and Breastfeeding alternating every other week?

    Hello. How long does Orkambi stay in the mother's body? Could I alternate between breastfeeding for a week, and getting back on Orkambi for a week and throwing out the pumped milk?
    Thanks!

  • #2
    CysticFibrosisMama,

    Orkambi is a combination drug of lumacaftor and ivacaftor. The half-life of lumacaftor is approximately 26 hours in patients with CF. The half-life of ivacaftor when given with lumacaftor is approximately 9 hours. Dr Hale recommends having a monthly liver panel on the infant and regular eye exams to check for cataracts.

    Dr Hale would love to do a case study with your breast milk. If interested in the study please call the InfantRiskCenter at 806-352-2519, all it will cost is a little of your breast milk and it will help other mothers down the road.


    Thanks,

    Sandra Lovato R.N.

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